Help Support Housing for Mentally Ill Persons

Courtesy of NAMI National:

HR 5772 Proposes Innovative Section 811 Demonstration Program and Includes Long Overdue Reforms to Existing Section 811 Program

NAMI and our colleague disability advocacy organizations in the Consortium for Citizens with Disabilities Housing Task Force (CCD Housing Task Force) and the Technical Assistance Collaborative (TAC) are pleased to announce that important legislation to spur investment in permanent supportive housing has been introduced in Congress.  The bill, known as the Frank Melville Supportive Housing Investment Act of 2008 (HR 5772), was introduced by Congressman Chris Murphy (D- CT) and Congresswoman Judy Biggert (R – IL).  The bill is named in honor of the late Frank Melville, a longtime member of NAMI Connecticut, and the first board President of the Melville Charitable Trust – a leading force in promoting supportive housing for people with severe disabilities.

This ground-breaking legislation proposes important and significant changes and improvements to the U.S. Department of Housing and Urban Development (HUD) Section 811 Supportive Housing for Persons with Disabilities program.  The bill would authorize a new Section 811 Demonstration Program that fulfills the promise of true community integration as envisioned in the Americans with Disabilities Act, and would enact long over-due reforms and improvements to the existing Section 811 production program essential for the program’s long-term viability. These changes will provide states and localities with a new infusion of critically needed Section 811 capital and project-based rent subsidy funding to produce more permanent supported housing.

Act Now!

Contact Congress today and urge your House member to cosponsor HR 5772.  Help us address the enormous housing crisis faced by millions of extremely low income people with disabilities.

Learn More

View NAMI National’s letter of support for HR 5772. Read background information on HR 5772

Sad Anniversary

Today is the one year anniversary of the murder-suicide at Virginia Tech, so I thought I’d write something even though it’s been a long day. According to an article in last week’s Chronicle of Higher Education, the main actions by Virginia governor Timothy Kaine have been to weaken privacy rights of individuals with mental illness, e.g. notify parents if a student has received treatment, and allow both public and private colleges to obtain records of mental health treatment from any other school the student has attended. Hopefully these records will only be used to help students, but somehow I doubt that this will lead to better care for the students in question, especially since this is an unfunded mandate like so many others. The round up of articles in today’s Chronicle doesn’t seem to address this issue — maybe I’ll write something when I have more time.

Meanwhile, my article giving a historical perspective on all this got accepted by the Harvard Review of Psychiatry and will be appearing soon. Also my former adviser and buddy Joan Jacobs Brumberg decided to hand over editing the collected volume on campus violence for Rutgers to me. She says that the main change at Cornell is there are now sirens on all the buildings. Now if they could just reduce the waiting time to get an appointment at the Counseling Service. . .

P.S.  Here is a really awesome way to commemorate April 16.  Reminds of me the “die-in” organized Women Strike for Peace after Nixon authorized bombing Cambodia.

Good Cause, Bad Idea for Fundraiser

Earlier today, our police department announced it was working with one of our fraternites (Phi Delta Theta) on a “Jail n Bail” Fundraiser for the Special Olympics. Now, I’m all for good causes, but like other faculty members, I thought the method of fundraising was rather tasteless. I cracked that at least this was better than the “senior slave auctions” we had in high school, although not much. Another colleague, one of my CCM members, commented on how this is similar to using Indian mascots — i.e. not good. Others raised issues about racism in the criminal justice system. Then we had a dismissive faculty member who just told us we were taking ourselves too seriously and said we were just biased liberals who need to get a clue.

I gave up at that point, but should have mentioned that there are a significant number of individuals with cognitive disabilities in the criminal justice system, mainly because there aren’t enough services in the community.

Also, I have some ambivalence about Special Olympics — certainly it’s nice to encourage physical fitness and I do think the event raises disability awareness, but doesn’t really do much to address vast inequities in care available to children and adolescents with special needs. Our state would rather place a child in an institution than give parents assistance with basic medical care and other needs.

more of the same

Howdy partners,

Here’s the latest from our cyberbully, ellipses indicate deletion of specific names:

It is certainly true that genetics has a role in how we look, and certainly has an effect on the pigment of our skin. That is science. However, when we generalize beyond a particular individual to describe characteristics that could be applicable to all in a certain class, then we can run into the difficulties of ethical stereotyping and misperceptions, which led Senator McCain to recently say in public that Iran is training Al Quida terrorists, which must be surprising to the Iranians who Shiite Persians as opposed to Al Quida, most of whom are Sunni Arabs. What, exactly is a Middle-East appearance or accent? We have such people on our faculty, and if there is a common denominator in either category, it escapes me. And yet some of the comments that have been posted seem downright silly to me. No one discounts the seriousness of the crime, not the state of mind of the victim. But S., T., L, and I are trying to show people how easy it is to confuse facts with inferences and to assign putative or circumstantial blame to “the other.” Years ago there was a single male in my department who, at the time. was single as I was. He was interested in American History, as I am, so I invited him to my apartment where I cooked a meal for us. afterwards I asked if he would like to go to a place with live music and see if we could meet some women and go dancing. He politely declined, said he was working on an article and wanted to do some more writing before retiring. About a dozen years later a friend of mine from graduate school took me out for lunch at a convention and told me that my colleague was gay, and that is why he declined to go out dancing with me. I learned an important lesson then. You seldom can see gay people, and most of the ethnic, racial, and geographical generalizations are myths. Not all Swedish women are blond, not all Italians drink wine (I know my step-=mother doesn’t drink anything alcoholic). The description that M.  put on our list said that the perp was a “MIDDLE EASTERN MALE WITH BUSHY EYEBROWS. It did not say that the victim thought that he might have been. No, it states, as a fact, that he IS Middle Eastern, has bushy eyebrows and is six feet tall. How many of you will wager with me that all three descriptors are correct. That the perp is Middle-Eastern, has bushy eyebrows, and is six-feet tall? Furthermore, should we now be afraid of G? Now the woman was under stress. But let us assume that the Police and M. are not equally stressed.

. . . stereotypes are dangerous. The people who live in and come from the Middle East probably have enough stress in their lives without imputing criminality or terrorism to them. Perhaps it will turn out that the perp was all three: Middle-Eastern with bushy eyebrows and six-feet tall. And I reject the argument that female victims of crime deserve special consideration or pathos. I have always contended that Central would benefit from a Committee on the Concerns of Men. I had to wait many years before I arranged a program on Prostate Cancer. I once listened to a student speech about abortion. The speaker sired the child and asked the class, rhetorically, if he had any rights concerning it being aborted. When I read Heather, I sometimes believe that I belong to a disenfranchised gender, at least in the work place. which explains why I protested the Take Your Daughters to work day. Sexist, isn’t it?”

Here’s my reply:

I was inclined to let this go, but since B__ has both questioned my intelligence (by referring to me and others who dare disagree with him as a “dumb-dumb”), called me a redneck, and in his latest message seems to suggest I’m sexist as well, then I’ve decided not to remain “dumb,” i.e mute.

First off, let me agree with L__ — you’re right, we need to pay attention to both the young woman who was attacked and the problem of racial profiling. S__, thanks for explaining your position, I understand your concerns much better now. B__, I find your messages counterproductive in that they replicate prejudice as much as they seek to criticize it. The word “dumb” was once a slur against deaf/mute persons, and is still seen as such by many members of the Deaf community since it links hearing impairment with cognitive disability. Also, the term “redneck” show class prejudice, in that it was coined by southern elites to refer to poor southern whites. There’s also an element of regional snobbery as well.

What concerned me from the start, and what still concerns me, is the underlying assumption that the description is a fabrication (and on that note I regret my use of the word “erroneous.”) We don’t have the first hand account of the young woman. Perhaps she say the attacker’s skin color, heard an accent that sounded like persons from Iraq and other middle-eastern countries she’s seen on T.V., and came up with middle-eastern male. Or maybe that inference was made in the police department. Perhaps I’m misreading all of this, but several of you seem to be suggesting that someone is lying, either the victim, the police, or both. Until we have more information, I don’t think it’s appropriate to question this young woman’s integrity or honesty.

I would add that we have had numerous police reports regarding perpetrators from other racial minorities. Yet, the issue of racial profiling has never come up in that context.

Finally I have an anecdote similar to M.A. — Back in the 1990s, I was pulled out of line, had my luggage examined, was patted down, and questioned at Heathrow on the way back to the U.S. from London. I just thought it was a random search, but it turns out I fit the profile Scotland Yard had for IRA suicide bombers — i.e. young, white female, traveling alone.

Disability History in the News

It’s been a busy week here at the University, so I haven’t had much time to do more than note the following articles related to disability history, loosely defined in one case.

First up is the New York Times review of The Lives They Left Behind, a book version of an exhibit on the Willard State Hospital at the New York State Museum. I really love the exhibit and am looking forward to reading the book. The book reviewer, being an M.D., seems to be missing the point of historical scholarship. She writes, “basing a complex argument on fragmented and archaic case histories is problematic both for science and for style. A coherent scientific argument demands complete, current data, not reinterpreted glimpses of the past.” This may be fine for “evidence-based medicine,” but really unfair to apply to historical scholarship, which by its very nature is based on the shards and pieces that manage to survive. Also, sometimes you just have to get angry about social injustice, even bitchy, like this righteous woman. [as Tina Fey said when Senatorella was on SNL, “bitches get things done.”]

Another story on exhibiting disability history to the public comes from this CBS news story on the Trans-Allegheny Lunatic Asylum, which has been turned into a tourist attraction and historic site. Some mental health advocates have objected to the use of the word “lunatic” in the museum’s promotional materials. Others have suggested that this term, while politically incorrect today, is an important part of the history that should not be covered up to suit modern day sensibilities. I’m inclined to lean toward the latter position, just as long as it doesn’t lead to a revival of the term in the popular lexicon (only we loonies can use the word!)

The final story comes from my interest in bicycling, and is not really about history except that it regards a well known cyclist from the 1980s and early 1990s, Davis Phinney. I had no idea he had Parkinson’s disease. His son is now an elite cyclists aiming for the Olympics. Maybe they’ll let Davis carry the torch, like they did with Muhammed Ali? Probably not, Davis was great in his day, but he’s not Lance.

Fearing our Students Redux

Our director of University relations forwarded me a commentary by Gary Pavela from this week’s Chronicle of Higher Education, entitled “Fearing our Students Won’t Help Them.” This is a really excellent article from a disability studies perspective, as it cautions us  to focus on actual student conduct not stereotypes. Like Kathleen Jones did at AHA, he points out that campus shootings are almost always suicides as well — so suicide prevention should be the focus.

Some thoughts on the last two shooting incidents. Comments about Steven Kazmierczak at NIU have remarked at how “nice” and “normal” he was, unlike the “freak” at Virginia Tech. Meanwhile, discussions of Latina Williamshave disappeared, except at this site.

This is in sharp contrast to an article in yesterday’s New York Times, Boys will be Boys, Girls will be Hounded by the Media.” The article observes, “Men who fall from grace are treated with gravity and distance, while women in similar circumstances are objects of derision, titillation and black comedy.”

I wonder — are the mental health problems of Britney Spears and Amy Winehouse more newsworthy because women are expected to be more “unstable?” Or do male celebrities like Owen Wilson have relatives who are better able to keep the press away and maintain privacy?

Another Campus Shooting

I had hoped to blog about something else today, but felt it necessary to comment on this news report of a shooting at Louisiana Technical College in Baton Rouge.

The story is still developing but what is notable is that this case, unlike others in recent memory, involves a female student killing other female students. This adds some food for thought, I think, to Historiann’s comments on gender and violence. Penny Richards over at Disability Studies, Temple U, has found some nineteenth-century cases of girls perpetuating violence at school. Also, colleagues in criminology and human development tell me that girls are becoming more violent in schools, and percentage of women convicted of violent crime increasing.

Update: more on this case from Chronicle of Higher Education.

Disability in the Media: Celebrities and Psychiatry

I’ve been struggling to come up with an entry for this month’s Disability Blog Carnival, the theme of which is “Disability in the Media.” In terms of psychiatric disability, this has been quite a year: first we had Owen Wilson’s attempted suicide and battle with depression. The latest, of course, is media speculation about whether or not Britney Spears has bipolar disorder. I tend to agree that these events are a mixed blessing — if they help to raise awareness and greater sensitivity towards individuals with mental illness, that would be great. Unfortunately, I think the reports on Spears are just going to reinforce the same old, same old.

“Fearing our Students” — Chronicle Column

I read Thomas H. Benton’s lastest column in the Chronicle of Higher Education with a mixture of empathy and horror. I definitely have had students who have given me the creeps (including one who followed me to my car after a graduate seminar, although eventually he quit when I told him firmly to cool it). What’s horrifying is his lack of empathy for students with serious mental health problems (and for students in general).

I can’t help wondering if the “glares of hatred” he receives from some students is a product of the really hateful attitude that comes through in this column. Perhaps it’s time for a sabbatical? At any rate, I hope the Chronicle finds some new columnists (moi?) to inject some fresh perspectives into this section.