Lizzie Simon at CCSU: Stigma Busting Par Excellence

detour Wednesday night I had the pleasure of attending a talk by  Lizzie Simon

author of Detour: My Bipolar Road Trip in 4D.  The talk was organized by the Central Access and Student Development office at CCSU, NAMI On Campus, and the Farmington Valley Chapter of NAMI-CT.   She started with describing how she explained mental illness to a hockey team — the person with mental illness is like the goalie, but instead of one team charging towards him/her, there are three: the disease itself, the mental health system, and stigma.  So, the goalie needs support from the rest of his/her team.  Great analogy!

I wish some of my students from my disability history class had been able to attend.  I think it would be helpful for them to see a young person  who is more typical of the majority of students with mental illness — i.e. neither violent nor weird.  Maybe her book will be as useful as Clifford Beers’ memoir from the early twentieth century.

My hopes have already been dashed. . .

In my last post, I expressed my hopes for the new president when it came to reproductive rights.  After being encouraged by the executive order lifting the Global Gag rule, I am crushed by the latest news from  Reproductive Health Reality Check that President Obama has caved into conservative pressure to eliminate funding for the Medicaid Family Planning State Option from the economic stimulus bill.  This means that women in the U.S. who are unemployed, underemployed, living in poverty, will not be able to get affordable birth control.

To express your concerns about this issue,  call the White House comment line at 202-456-1111 and use these talking points from PPFA.

P.S.  Christina Page’s blog entry on this issue further demonstrates why Chris Matthews is an idiot, like we needed reminding. . .

Belated Blog for Choice Post

bfcday2009

Yesterday was Blog for Choice day, in honor of the 36th anniversary of Roe v. Wade.  Here’s my belated answer.  The question was, What is your top pro-choice hope for President Obama and/or the new Congress?:

Well, this is probably too much — but how about getting someone who is pro-choice to head HHS?  Seriously, I don’t have much faith that Tom Daschle will be much of an improvement over his predecessor.  I’m even more disappointed about the new chair of the DNC.  Also, how about picking someone for Attorney General who has come out firmly in favor of reproductive rights?  There was much talk during the campaign that President Obama would save Roe — but these choices for key posts are not encouraging.

HPV Vaccine Conference

Now that my grades are done (woo-hoo!) I can blog about the conference on “Cancer Vaccine for Girls” that I presented at last week. My paper went really well — I was the resident expert on history of adolescent girls and gynecology. My paper pointed out that pap smears and routine gynecological exams for girls and young women were at one time controversial because of worries that this would rupture the hymen and cause psychological trauma. Other papers looked at the history and current issues regarding vaccination in the United States (apparently Colorado has the lowest vaccination rates in the country, which has led to epidemics of pertussis and measles, especially among home-schooled kids. ) The picture was dramatically different in Africa, where the confluence of HPV and HIV has led to astronomically levels of cervical cancer. The one clinician, a gynecologist from Botswana, said they would welcome the vaccine as it would alleviate a major public health crisis. In Niger, however, the predominantly Muslim population distrusts vaccination, seeing it as part of a longer pattern of abuse and genocidal behavior by colonial powers.

There were also very interesting presentations on gay men’s health, and implications for straight men’s health as well. Apparently HPV causes anal cancer, as well as oral cancers which until now have been attributed to “male” behaviors like smoking and beer drinking. There also appears to be a link between HPV and prostate cancer. So, vaccines and smears for men too?

The conference had presenters from a variety of disciplines, including filmmaker Giovanna Chesler, who showed this very interesting satire on the notorious Gardasil commercials:

This video is from her website Tune in HPV which grew out of her experience with HPV related disease (she spent six weeks bedridden after surgery for cervical displasia). So, ladies, remember to get your annual pap smear (this means you too Historiann!)

P.S.  speaking of vaccines, just noticed a piece over at Disability Studies, Temple University about Katherine Seidel, who blogs about autism, and who has been subpoenaed by the plaintif’s attorney in an anti-vaccine lawsuit.  Be careful what you say out there, the lawyers will be after you next!

Presentism, Poxes, and Pap Smears

Today’s post tries to bring together a bunch of issues that have come up in my various listserv and blog reading. First, the issue of presentism came up on Christopher Green’s blog, Advances in the History of Psychology. I don’t usually read this blog, but Chris advertised this exchange on Cheiron’s listserv. Chris is concerned about edits to his history of psychology entry in Wikipedia, about 6,000 words of which Chris wrote himself. Chris objects to a contributor named “Jagged 85” who has been inserting material on medieval Islamic psychology. Because part of what Jagged 85 writes argues that the Islamic world pioneered in the treatment of mentally ill individuals, including building the first mental asylums, I asked the question, “It seems to me that a related question is what “counts” as the history of psychology. Much of the Islamic section seems concerned with treatment of mentally ill patients, i.e. clinical psychiatry. Isn’t this part of the history of psychology? If not, why not?” So far, no one has addressed this point. I should note that a certain kind of presentism is at work in Chris’ blog in that he starts from the point of view of what “counts” as psychology today, and then works backward to the field’s roots in 18th century laboratory science.

Another kind of presentism appears on in a post on Historiann. regarding the new vaccine for HPV. She ties the current controversy regarding Guardasil to earlier debates about smallpox inoculation. Since I’m currently teaching about Cotton Mather and the inoculation debate in early 18th-century Boston in my history methods class, I wrote that in Mather’s time inoculation was a risky procedure — there was no certainty that the patient would not develop a full-blown case of smallpox, the patient could still transmit smallpox to others, and because inoculation consisted of introducing pus or scabs under the skin, the risk of infection at the inoculation site was not insignificant. So, we should be careful about attributing opposition to Mather solely to ignorance — there were legitimate concerns about the safety of the procedure which were raised by physicians and laypersons alike. For more on this issue, see Maxine VandeWetering, “A Reconsideration of the Inoculation Controversy.” New England Quarterly 58/1 (1985): 46-67.

Now on to pap smears. I recently submitted a proposal for a conference on “Cancer Vaccines for Girls? The Science, Ethics, and Cultural Politics of HPV Prevention,” which is going to be held at Rutgers University in May. My plan is to relate this debate back to my earlier work on the history of gynecological exams for girls. I’d also like to comment on Karen Houppert’s article in the Nation. Although I think Houppert raises some good points, I that the term “strange bedfellows” that lumps together religious conservatives, anti-vaccine libertarians, Big Pharma critics, and “and a smattering of women’s health advocates” too easily dismisses attempts by feminist health activists to craft a nuanced reaction to this new technology. I think she is particular unfair to Amy Allina at the National Women’s Health Network. My thoughts on the issue, thus far, are that by focusing on individual attitudes and choice, and emphasizing what Allan Brandt calls the “moral valence of individual risk,” the push for universal vaccination overlooks larger public health issues such as socioeconomic status and access to health care services. Until there is a greater social commitment to meeting the health needs of uninsured and underinsured women, a disproportionate number of whom are from racial minorities, these women will lack the routine preventive care more privileged women take for granted.